Handicap Accessible???? Really?


Yesterday was the first time in a very long time that I woke up and wanted to get out of the house.  I took extra pain meds, my husband loaded my wheelchair in the back of the truck, and we left for the new outlet mall which just opened a few miles from our house.

The day was warm, but the humidity was low.  I enjoyed being out in the sun which I normally avoid all summer long.  The heat is usually too much for me in the summer and I burn easily due to several of my meds.  Thankfully, the mall had covered walk ways to protect me.

The mall is set up as individual stores and the “halls” are open air.  In an indoor mall, this is not a problem as the halls are smooth and the doors of the stores are open.  Here, the doors of the shops were mostly closed.  There were few automatic doors and no door opener buttons for those persons using mobility devices.  Most shops had 2 sets of doors to open.


This was the only area with automatic doors.

Also, the doors had rather high thresholds which made it difficult to cross with the wheel chair.  We got stuck several times and had to attempt crossing the thresholds 2 or 3 times.  Rarely did people help and only one store employee made an effort to hold the door open for us.


I can’t imagine what persons in wheel chairs face daily.  My husband pushes me in the wheel chair as my joints are much too painful and I need to avoid strenuous activity to protect my joints until the inflammation is under control.  Strenuous activity can cause more joint damage.  This is also why my rheumatologist wants me to wait to start physical therapy.

What if a person using a mobility device (wheelchairs, walkers, or even canes) don’t have someone with them to help?  Do they just avoid the stores whose doors where not open?  I can easily understand how a person can feel a lack of independence and how that may affect one’s coping ability.  I only use my wheelchair when I go someplace like a mall, craft store, or Ikea when more walking than I can manage is required.


How would you feel if you faced these impediments daily?

On a positive note, I did see these really cute Adidas!  ;)


Handmade Beach Blast Summer Samplers From Out Of The Box Samplers

I was recently asked to participate in a wonderful opportunity to introduce my products to new customers.  Out of the Box Samplers are a wonderful way to purchase products from different companies with a variety of items.

Shop owners send sample of their handmade products and you can buy a box!  Each box contains a minimum of 16 samples.  August’s sampler includes items for a beach theme.  I hope you will stop by the website and possibly box a box.  Boxes sell out quickly!


Here are some of the items I sent to be included in the sampler box.


August’s boxes will soon be available for purchase.

Click this link to visit the site and possibly purchase a box when they are ready.



Your Handmade Celebration at www.etsy.com/shop/JuliesSugarSoaps

July was by far my busiest month since I opened my soap.  I had 41 orders which took www.etsy.com/shop/JuliesSugarSoaps over the 200 sale mark!  I really enjoy working on celebration favors and decorations for my customer’s celebrations and try to make each order extra special.

Handmade items are very popular for weddings, baby showers, and bridal showers.  I have recently added new items to my shop for any celebration.  Each soap and decoration is unique and one of a kind items.  I even add customized labels or tags to complete the look.



These Mason Jar soaps were inspired by Ball’s anniversary mason jar line.

You may choose the colors and fragrances. I offer package options to suit your needs.

Endless Summer soaps come in sets of 3.  Enjoy the scents of  Watermelon, Iced Tea, and Sea Glass.  

Bulk orders are also available so you can share them for your summer wedding favors or a backyard bbq.


Add a sweet banner to your wedding cake or birthday cake with any message you would like.

New wooden items include table number signs and Mr & Mrs signs.


I have also updated some of my customized labels.

What I would do for a battery pack, an ice pack, a packed suitcase.

Although my test results for Cushing’s syndrome came back negative last week, I found myself more frustrated than ever. Cushing’s is treatable and would have explained most of the random symptoms I have that my doctors say are not important.

I did however find out that my blood iron and stored ferritin levels are once again extremely low. This is where the battery pack would come in handy. I fall asleep all the time unless I am actively doing something.

My sweating problem is just as bad as ever. I only go out of the house for dr’s appointments early in the morning to avoid excessive sweating. All it takes is walking around in my house a few times and 5 minutes later my hair is drenched (like I just showered and didn’t bother to dry my hair). This even happens if the temperature in the house is 60°F! My husband is freezing, but there I am literally dripping.

At the beginning of the summer, I really felt stir crazy and wanted to get out of the house even if it was only for a weekend. Now, I would welcome someone to do the packing for me and then, “Beam me up, Scotty” to the closest iceburg.

Cushing’s Syndrome

Life has recently been getting in the way.  This time it is in the form of mind numbing exhaustion and completely uncontrolled high blood pressure.

At the moment, I am waiting for results from labs to see if I have Cushing’s Syndrome.  Not feeling well enough to write a detailed treatise, so here are a few links: